October 2 appointment

We went back to see Dr. Noble at Blank Children's today. I went with quite a few questions to ask, and I still have lots.

We got there and checked in and were taken back right away with the nurse. She did height and weight (27 lbs with shoes and clothes- wow! and I can't remember height but we will get that next week with Dr. Nau). She did blood pressure and temperature, too.

It wasn't long until Dr. Noble came back. He was impressed with her progress since June and was happy to see her walking. We filled him in on how long she had been walking and all the other gross motor stuff.

He did a few problem solving tests on Norah, in which she refused to participate until we started talking about other things and then she did them all when she thought we weren't looking (putting blocks in can, stacking blocks, lining up blocks, and  3 piece puzzle).

He looked at her hips, legs, ankles and arms. Both of Norah's PT have noted a preference with her right leg and a weakness on the left. Because of this, he does not want to release Norah without doing an MRI of her brain. There is a decent chance that she has a mild form of cerebral palsy, which we have been told before, so this isn't a surprise especially with her strength differences left vs right. She has seemed right handed since before kids should, so that is another sign of that. This used to freak me out beyond belief but I have done a decent amount of reading about the mild type she may have and that has put me at ease a bit. I obviously don't want her to have a life long, non-curable condition, but I know she will still rock at life. She might just have to try a little harder than others, but that is no different than what we have been doing and I still thank God everyday that we have her. I would never ever want it any other way.

So, during her appointment with Dr. Nau next week she will also to pre-op stuff so she can be put out for that. We hope to have it done this month.

Once we see what that shows, we will go from there. He is hoping she will be done seeing him if it is an all clear and she continues to progress. He does think she needs to continue PT for a while and said he will help with Coventry as far as writing a letter and what not. We will attempt reauthorization for the MRI, so any positive thoughts you can send for that would be appreciated. MRIs are not cheap, especially when you add anesthesia to the mix. I'd rather not bite that bullet all by ourselves!